Rubber Bands and Chewing Gum

So, here I am again sitting in the hospital waiting room waiting to find out if all is still well in my body. I’m always nervous as I wait. I suppose it’s not surprising, really. I have no reason to believe I am not still in remission but then I never imagined I’d have had an enormous tumour growing in my chest at the point I got diagnosed so I’ve learnt to not take anything for granted so far as health goes. You never know what they’ll say.

The stress of these appointments never lessens. As I sit here, in the same waiting area for patients undergoing treatment, I cannot help but be plunged back three years and remember how terrible it was undergoing my own gruelling treatment. Twelve chemotherapies spaced two weeks apart – horrendous…and then the radiotherapy to round things off.

I feel sick, it’s totally psychosomatic of course. It’s not just nerves, it’s that chemo poisoned sick feeling – a nausea that is hard to describe unless you’ve experienced it. I am sure there is an element of PTSD in all this. Health trauma to add onto the various other traumas… ha. You couldn’t make it up.

The longer I sit here (the service is overstretched so there is always a couple of hours delay being seen) the worse the anxiety gets. I get a full body fear and my brain starts on some impressive mental flashbacks. I loop round different points in my treatment having sat in this place waiting for so many things: the shock of initial diagnosis, CT guided biopsy through my rib cage, bone marrow biopsy (oooooouuuuuuucccccchhhhhhh!!!), the first chemo, the middle chemos, the feeling like I was dying, the final chemo… the hair loss, the loss of myself… it’s really horrible.

The staff are lovely but I hate it here. They remember me. Ask about my kids by their names. Ask after my wife. It’s nice to have people that seem to care but actually, I wish I didn’t have to come here at all. I wish that there was no prior relationship with these doctors and nurses. I don’t like being reminded of how bad things were and how precarious things still are. I’m always watching and waiting. Never being sure that things are ok. It can all change so quickly, can’t it? One bad cell mutation and bam off we go again.

It’s especially hard being here today. This time last year my very lovely friend and mother figure died in here, literally thirty metres from where I sit. It’s so upsetting. I cannot believe she’s not here anymore. I feel devastated. Losing her reminds me that nothing is safe. There are treatments but they do not always work. People we love die. The idea that we fight cancer is rubbish. We don’t fight it. Our cells do what they do. The treatment may or may not work. Some of us are lucky. Some of us aren’t.

So not only is today tricky because my darling friend is front of mind and the grief comes in waves; in addition to this my oldest friend has had confirmation that her metastasised breast cancer is spreading further in her bones – it’s not looking at all good – there is no cure for her; they’re just trying to buy time. Another friend is having her third chemo treatment today for breast cancer and will have a mastectomy once the chemo finishes- her waiting area is across the hall and I expect her to walk in soon. I don’t especially want to see another familiar face in here. I wish neither of us needed to be here.

I cannot get away from the disease and know that it is doing its best to take away people I love. I feel guilty for being the one that has survived. It is what it is. I am glad I am alive, of course I am, but I am sad. Deep in my core I feel so much sadness about who and what has been taken from me. I am angry too. Raging in fact. But the rage is getting caught up in feelings of abandonment and rejection and all that shitting shitty shitastic attachment stuff.

What’s going on?

Well, grrrr, I’m fucking furious with my therapist. The session before her break I told her it was coming up to the third anniversary of my chemo finishing and the first anniversary of the death of my friend, and that both these things coincided with my follow up appointment at the hospital in the same ward she died on. It was a triple whammy of grief, anxiety, and fear. We’ve spoked at length over the years about all these things. She acknowledged that there was going to be a lot to contend with and then went on her break…another fucking therapy break. Jeez!

The week rolled by and then it was Monday again and the end of the three session break. I looked at my calendar on my phone and discovered that she’s away again on the 16^th. I had no idea. I hadn’t registered it at all. I seem to be on breaks more than in therapy at the minute. This sudden realisation that Em would be gone again really unsettled me. I can’t seem to find my feet at all because she is always gone…or that’s how it feels.

Monday’s session was fine-ish. I couldn’t look at her, though. Every time I glanced her way I looked at her and felt like I had been burned. I’ve written about eye contact in therapy before and how it is for me. I’m not surprised I was finding hard to connect. Things haven’t exactly been smooth sailing in therapy lately. And then I had sent that text after the last session about the heart in the bottle…which she completely ignored.

No change there, then.

I am almost beyond the point of caring about her lack of acknowledgment of anything I send her in email or text. She literally responds with a text ‘ok’ even if it’s about scheduling, there’s no ‘see you then’ or anything borderline warm -it’s one word! She couldn’t be any more ‘bare minimum’ if she tried. I’d love to know how she thinks this kind of communication is helpful to me. How does this help someone with deep attachment wounds forged in childhood? She seems to want to work with the parts and yet she seems to forget that every interaction we have is being felt by many many different parts. Adult Me understands she doesn’t do outside communication…sort of… but the little ones cannot understand it at all.

Anyway, I’m used to that now. BUT. And here’s the big BUT. There are occasions where her lack of engagement with me feels really painful and uncaring. It’s fine (sort of) to not respond to texts and pick it up in a session (most of the time). I get therapy needs to take place in the room. BUT…there’s other times when I actually need tangible, real time, here and now, support. I need her to be there for bigger things. And this week is a big thing. The cancer stuff and the anniversary of my friend dying is a big thing.

I told her I was stressed out on Monday about today’s appointment for the reasons I’ve just mentioned. Usually I would leave a session before a hospital follow up and she’d say ‘I hope Wednesday goes well’ which is, at least, something. She didn’t do that this week, though. I don’t know why. I don’t know whether she just doesn’t hold that stuff in mind or she just couldn’t care less.

The session was really uncomfortable at times. I spoke a lot about work and being overstretched. As I did so, I could feel the young parts getting overwhelmed. It was that whole needing to connect but being unable to. My heart was in the bottle but I couldn’t get it out. She made no reference to that text I’d sent and so the conversation didn’t open up. With about twenty minutes to go I told her about two dreams I’d had that night. I needed her to at least see how much I was struggling even if I couldn’t really connect on the level that I wanted to.

1. I was heavily pregnant and the waters breaking but nothing happening. I knew there was something wrong and rang the hospital. They said they were busy and disregarded my concerns, telling me to come in when there were regular contractions. I said there were no contractions and that the baby wasn’t moving. They weren’t interested in the slightest. I got increasingly frightened and after three days rang again saying nothing was happening, the baby wasn’t moving, and that I needed to be seen. They reluctantly agreed for me to come in and when I did it was confirmed the baby was dead inside me.
2. I’d dropped my kids at school, returned home to find the door of my house wide open. As I walked I realised I’d been burgled. Every single room was ransacked. Stuff was all over the floor, broken, but nothing seemed to be missing. I walked from room to room feeling devastated and confused. Why would someone do this to me? What were they looking for? I went into my room, equally as wrecked, and sat trying to think what had been taken but couldn’t discover anything. It was as though someone had just decided to destroy everything but for no reason.

We talked a bit about them. She said that she thinks they’re transformational, that now it’s time to grieve the big losses which is kind of what I was saying in my last blog post. I think, though, that there’s a lot to be said about people not caring enough, not finding time for me, and losing my baby as a result. That literal inner child is dying right now. It’s crap.

Anyway, that’s not why I am sad. I mean it is sad! I get there is mourning to be done. There is a load of grief to wade through. I need to face the mother wound. This is not new news. What is making me feel really sad is that I feel like I am completely on my own, not just with that past stuff but with the big life things in the here and now. I get how I view things today is informed by the lens from the past, so probably feels way worse than it actually is; but I am struggling to understand how, after six years my therapist was unable to wish me well for this week’s appointment. Like is that so very hard?

I also feel sad that she is unable to be human enough to step outside her rigid position and say, ‘look I know this week is incredibly hard for you and I see how much you are struggling. If you would find it helpful you could text me on Wednesday to check in. I hope that it all goes well’. Like is that asking too much? I’m not asking for mummy cuddles here. I’m not about wanting to know she is still out there somewhere. It’s not that attachment stuff in the usual sense. Today I am an adult facing huge stress and could do with a bit of support from someone who is supposed to get it and care about me.

Perhaps I am completely missing the point. I don’t know. It’s at times like these that I doubt myself. Is my anger and upset justified? Perhaps the level of anger is intensified because of my past, or being disregarded by others, but the feelings are still real. I am upset that outside of those 50 minute slots I actually don’t matter to her.

Ugh.

I don’t know if I have explained that very well…but in reality, it doesn’t matter does it? She’s not there for me. I can’t reach out. There is no support and whatever happens today she is not interested.

I want to run away from her. Cut ties. Ditch therapy. I don’t want to feel like this anymore. I know she’s not my mum, but I did hope that she was someone who might care a little bit.

I know I was exactly the same last time I was here. I hit the rage. It cycles. It lessened in the end. But man, I cannot keep doing this to myself.